About us

The Founding of The Orange Ribbon

Hi, I'm Erin Roy, founder of The Orange Ribbon. When I was diagnosed with Complex Regional Pain Syndrome (CRPS) 14 years ago, I quickly realized how isolating, overwhelming, and confusing the journey could be. From finding trustworthy specialists to navigating endless treatment options, I often felt like I was searching in the dark.

I created The Orange Ribbon so no one has to walk that road alone. This is a safe, compassionate space where you can ask questions, share your experience, connect with others who truly understand, and find community support.

Looking ahead, my goal is to launch dedicated fundraisers to help bridge the financial gap for CRPS fighters who cannot afford necessary care and treatment. You belong here, welcome to our community.

Erin Roy
Founder, The Orange Ribbon