Community guidelines

We are here to support each other. These rules keep it safe.

  1. Be kind. No harassment, insults, discrimination or bullying. Everyone's CRPS journey is different.
  2. Keep language clean. No swearing or foul language anywhere: usernames, bios, posts, replies or photo descriptions.
  3. No politics. We don't discuss politicians, parties, elections or campaigning, in any country. This keeps the community welcoming to everyone living with CRPS, whatever they believe.
  4. One name each. Every member has a single, unique username. Copying or closely imitating someone else's name is not allowed.
  5. Share experience, not medical advice. Say what worked for you, not what someone else must do. Never tell anyone to stop or change prescribed treatment.
  6. No miracle cures or selling. No advertising, spam, affiliate links, or unproven "cures".
  7. Protect privacy. Don't share sensitive details — your own or anyone else's — such as home addresses, phone numbers or financial information. Don't repost other members' stories elsewhere.
  8. Handle difficult topics with care. If you are struggling or having thoughts of self-harm, please reach out to a crisis service. Moderators may remove posts that describe methods of self-harm, and may share support information.
  9. Respect each other's stories. Listen first. Don't dismiss, compare or argue about someone's pain.
  10. Report problems. Use the Report link on any post. Moderators are volunteers, so please be patient.

Moderators may edit, hide or remove content, and suspend accounts that break these guidelines.

Need a hand using the site?

Questions about how the forum works, how to find your way around, your account or a problem with the site? We're happy to help.

Email us at orangeribbonza@gmail.com.

We are volunteers, so please allow a little time for a reply.

This is not an emergency service. If you are in crisis, find urgent help here.